Twice daily for about 30-40 minutes with pep mask and percussion (patting)
Nebulisers:
Alzi three times a day, Salbutamol twice a day, Hypertonic Saline (7%) three times a day and Pulmozyme once a day, all through the I-Neb or EFlow
Click here to see me doing my physio and I-Neb
Tablets and Inhalers etc:
Nutrizym 22 - taken with food
Symbicort Turbohaler - twice a day
Lansoprazole - twice a day
Phytomenadione (vit K) - once a day
Vitamin E - once a day Vitamin A and D - once a day
Ursodeoxycholic Acid - twice a day
Taurine - twice a day
Calcichew D3 Forte - once a day
Risedronate - once a week
Singulair - once a day
Movicol - one sachet a day
Senna - once a day
Voriconazole - twice a day, course taken when required
Insulin for Diabetes
NovoRapid - 2-6 units per meal
Calorie Supplement:
Skandishake, Build Up and Ensure Plus - 1-3 a day when required (e.g. small appetite or weight is falling)
Fev1 (% of predicted)
5th July 13 44%
31st May 13 40%
11th April 13 49%
8th March 13 40%
18th Jan 13 43%
17th Oct 12 45%
31st Aug 12 42%
23rd July 12 42%
20th June 12 42%
24th Feb 12 50%
10th Feb 12 43%
3rd Feb 12 41%
3rd Jan 12 41%
28th Dec 11 33%
21st Dec 11 30%
12th Dec 11 42%
2nd Dec 11 32%
2nd Nov 11 42%
26th Sep 11 41%
15th Aug 11 41%
8th July 11 40%
27th June 11 43%
13th April 11 41%
28th Feb 11 39%
31st Jan 11 41%
14th Jan 11 42%
17th Dec 10 46%
15th Nov 10 46%
07th Oct 10 42%
2nd Sep 10 39%
19th Aug 10 35%
17 Aug 10 39%
23 June 10 42%
26th May 10 39%
28th April 10 36%
8th March 10 43%
22nd Feb 10 43%
9th Feb 10 36%
25th Jan 10 36%
21 Dec 09 43%
02 Dec 09 31%
25th Nov 09 33%
23 Oct 09 41%
7 Sep 09 46%
26 Aug 09 43%
17 Aug 09 42%
31 July 09 39%
15 July 09 47%
27 June 09 46%
6 April 09 46%
19 March 09 44%
4 March 09 39%
27 Feb 09 39%
29 Jan 09 46%
15 Jan 09 52%
5 Jan 09 45%
17 Nov 08 52%
16 Oct 08 42%
1 Oct 08 38%
17 Sep 08 41%
IV's:
On average I have home IV's about every 2-4 months. I usually have a combination of two antibiotics Tobramycin or Colomycin and Aztreonam or Ceftazidime.
To see me do my IV's click here
I have a P.A.S. port in my left upper arm, this is the 4th port I have had.
Pictures of port - needle in, with dressing on
28th April 10 36%
8th March 10 43%
22nd Feb 10 43%
9th Feb 10 36%
25th Jan 10 36%
21 Dec 09 43%
02 Dec 09 31%
25th Nov 09 33%
23 Oct 09 41%
7 Sep 09 46%
26 Aug 09 43%
17 Aug 09 42%
31 July 09 39%
15 July 09 47%
27 June 09 46%
6 April 09 46%
19 March 09 44%
4 March 09 39%
27 Feb 09 39%
29 Jan 09 46%
15 Jan 09 52%
5 Jan 09 45%
17 Nov 08 52%
16 Oct 08 42%
1 Oct 08 38%
17 Sep 08 41%
IV's:
On average I have home IV's about every 2-4 months. I usually have a combination of two antibiotics Tobramycin or Colomycin and Aztreonam or Ceftazidime.
To see me do my IV's click here
I have a P.A.S. port in my left upper arm, this is the 4th port I have had.
Pictures of port - needle in, with dressing on
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