Today at yoga I was informed by a lady that it must be a pain to have asthma, this a regular thing, people assume I have asthma as I use a blue inhaler like asthma sufferers. I told her I didn't have asthma but cystic fibrosis, she seemed quite shocked and exclaimed 'oh poppet that's even worse!', I wasn't really sure what to say apart from 'yeah it's not great'. She then proceeded to tell me how I should try reiki to help me. I never really know what to say when people try to suggest things to try 'fix' me, I haven't asked them for advice, usually their advice is useless and I don't really want to discuss my treatment plan with a complete stranger.
Here are all the tips I have been given over the years that I can remember - take an antihistamine, have a glass of water, take reflux medication, stop smoking, have a cough tablet, have a drink of honey, try reiki, go see a doctor, have a lemsip, get out of the cold, eat garlic, go get in bed, have a sit down, have some vitamin C, think positive, have a rest, get a good meal in me, I'm sure there are more that I've forgotten. None of these things are going to make my CF go away, they will not get rid of the mucus on my chest making me cough, increase my lung function to stop me being breathless or get rid of the infections breeding on my chest. A few of them might help me temporarily such a sitting down or having a rest, however this is how I am ALL the time, I can't spend my life sat down although I try my hardest to haha!
I get sick of people trying to 'fix' me. Complete strangers I don't know and don't care to discuss my health with. If it's not advice they are giving me, its useless comments such as 'oh you have a bad cough', yes and the sky is blue and grass is green, thanks for that wonderful insight! I reckon I can't go 48 hours without getting a comment about my cough. Think how annoying it would be if you had a massive spot on your face that you were already self conscious and annoyed about and you can't get rid of it. Imagine people keep telling you about this spot and stupid tips on how to get rid of it. Now imagine this has happened for 27 years! So yes I try to be polite but it gets tiresome to the point I try to not cough, do it quietly to avoid drawing attention or avoid doing activities that make me cough.
Before I went in to hospital but when my chest was getting really bad I forced myself to go to the gym and was coughing lots, a guy stood there and mimicked me coughing then expected me to laugh with him. I didn't find it very funny, in fact I was mortified.
I know people like to show concern, but please don't try to fix me and please don't tell me I have a cough, sometimes its worse and when it is my family and friends notice and are permitted to comment, this is the only time!! However to the general public, yes I have cough and it's not going away, its here to stay. I can't be fixed, I accepted a long time ago this was how my life was going to be, I live with a life threatening condition, it never gets better, all the treatment I have is to try keep me stable and not to make me better. I know for healthy people this is difficult to understand, they have a problem and they go to the GP and the GP makes it go away, they have a cold and spend a few days in bed and then are back to normal. This is not what happens to people with CF or other long term conditions, I am never going to be better, I have to learn to live with my condition.
Showing posts with label yoga. Show all posts
Showing posts with label yoga. Show all posts
Friday, 9 November 2012
Sunday, 19 August 2012
Summertime
Well I must admit I am totally confused by how many enzymes I need to take with food! I have not moved over to Nutrizym 22 yet but have been experimenting with Nutrizym 10. I am not taking any with breakfast or lunch and only two with my evening meal and 4 with a really fatty meal such as takeaway. Yesterday I went to the cinema and ate about 2/3's of a large popcorn and two small milky ways (well Lidl's version of them!) and only had one tablet. I seem to be more regular and less bloated! I need to speak with the dietitian at my next outpatients appointment as I am so confused, i'm not sure what I should be looking for in my stools (gross I know). I used to get belly ache and horrible stools if I didn't take my tablets, is it possible to become more pancreatic sufficient as you get older!? I think they need to test me or I need to confirm what I should be looking out for. It's really weird eating and not taking any tablets, I keep getting them out of the drawer automatically! My weight is going up if anything as I am just hungry all the time, it's driving my insane, I don't know if this is linked to me not taking my enzymes. Food just tastes so good at the moment!
I'm really stable at the moment and feeling good. Don't get me wrong I still have CF and have serious lung infections and lung damage and my energy levels are not the same as someone without CF, I still cough lots and get breathless and have to do loads of treatment every day. Yesterday in the cinema I was coughing loads and was worried I was annoying everyone, I was scared I'd even coughed a greeny on my hand (I hadn't thankfully!), so I still have to deal with crap like that on a daily basis. I'm saying this because some people seem to think that when I say I'm feeling good I am as healthy as a normal person, no not at all, one can only dream... However, I am good for me, but if a healthy person felt like me they'd probably be curled up in bed whining.
I have been to the gym four times a week the past two weeks. Can you believe that?! Yoga once a week and gyming it three times, I swear if I ever have a transplant and have normal energy levels I'm not going to be able to sit still because even now if I feel good I feel I need to be doing stuff to keep that way. Obviously my gym sessions are not anything to shout about, there was a small child next to me on Thursday who was going faster on the cross trainer than me but I'm beating my personal bests if you can call them that, so I'm proud and happy with myself.
I feel like life is how it should be at the moment, I wake up on a morning and rather than dreading the day and figuring out how I'll manage to get through it, I can wake up and look forward to the day. Summertime is definitely the best time of year even if we are in England and it rains for most of it!
I'm really stable at the moment and feeling good. Don't get me wrong I still have CF and have serious lung infections and lung damage and my energy levels are not the same as someone without CF, I still cough lots and get breathless and have to do loads of treatment every day. Yesterday in the cinema I was coughing loads and was worried I was annoying everyone, I was scared I'd even coughed a greeny on my hand (I hadn't thankfully!), so I still have to deal with crap like that on a daily basis. I'm saying this because some people seem to think that when I say I'm feeling good I am as healthy as a normal person, no not at all, one can only dream... However, I am good for me, but if a healthy person felt like me they'd probably be curled up in bed whining.
I have been to the gym four times a week the past two weeks. Can you believe that?! Yoga once a week and gyming it three times, I swear if I ever have a transplant and have normal energy levels I'm not going to be able to sit still because even now if I feel good I feel I need to be doing stuff to keep that way. Obviously my gym sessions are not anything to shout about, there was a small child next to me on Thursday who was going faster on the cross trainer than me but I'm beating my personal bests if you can call them that, so I'm proud and happy with myself.
I feel like life is how it should be at the moment, I wake up on a morning and rather than dreading the day and figuring out how I'll manage to get through it, I can wake up and look forward to the day. Summertime is definitely the best time of year even if we are in England and it rains for most of it!
Wednesday, 22 June 2011
What a Difference a Week Makes
I've been a very naughty girl, I ran out of pulmozyme on Tuesday and didn't go collect the prescription from my GPs until Thursday. Which meant my pulmozyme wasn't really for collection until yesterday, so I haven't had pulmozyme for almost a week. It's mostly my fault but also the GPs and drug suppliers fault for being so slow and taking 2 days to do my prescription and then 4 working days to deliver it. If I'm going to run out of something I literally have to realise a week in advance so I can get the prescription and have it in the chemist, it can be difficult to be so organised, especially when my GPs is not around the corner and closed on a Wednesday afternoon. At least I can now email my prescription requests, I used to have to drop the request off and go collect it 2 days later, why it takes 2 days to write a prescription is beyond me...
Anyway, yes I have been naughty and now my chest is feeling crappy. It could be coincidence, but it's more likely it's due to lack of pulmozyme. My sputum is thicker, darker, more difficult to shift, it sticks at the back of my throat and makes me feel sick and it sounds more meaty when I cough. I felt so tried yesterday, all day, everything I picked up felt so heavy, I feel asleep at about 9.20pm and slept like a rock last night until 10am this morning. Well apart from when I woke at midnight due to some women shouting in the street (I wear earplugs so she must have being very loud!) and a guy telling her to 'go the f**k to sleep', I live on such a lovely street!
Hopefully now I'm fully stocked on pulmozyme I'll start to feel better again. A few other issues I have been having are A) I am weeing for Britain, I can't stop! I go upto 8 times during the night! and twice during a physio session. Worried I have a weak bladder and now idea how to sort it out. B) My bones keep aching on a night, particularly my bones around where I sit and the tops of my legs. I feel like an old woman! It hurt so much the other week I was crying in pain as it hurt to walk, or to sit and when I coughed it was horrible. I ended up lying on my back with my legs up in the air to take the pressure off my sitting bones. Some pain killers seemed to help it and I had to lie on my front in bed which isn't great as I can't breathe very well when on my front! I have outpatients next week so will mention both things and see what the Doctor has to say.
I was given some interesting advice last Friday in my yoga session.... I was coughing alot during the class and afterwards the yoga teacher came over to me and told me one of the men in the class was a Doctor and suggested my cough could be caused by acid reflux (which is basically like indigestion) and to try take some gavisgon. She said she told him about me, not sure what that means, she knows I have CF but that doesn't mean she knows anything about it! But he insisted she tell me. I politely informed her I was coughing because of the mucus on my chest and I am on tablets slightly stronger than gavisgon for my reflux and there is nothing I can do about the coughing. All I want to do is go to yoga, get some exercise and mind my own business!
Pete did a 10k run on Sunday, the Jane Tomlison Run for All as part of his training for the Great North Run. Thanks to all of you that have already sponsored him but for those of you who haven't please do! Pete is working so hard to prepare himself and remember it all goes to the CF Trust who have recently had to announce they are having to put research on hold due to lack of funding http://www.bbc.co.uk/news/health-13643267 . Please click here to donate.
It's Alfies birthday today, he is 4 years old! He is heading to middle age now bless him, maybe he'll buy a sports car or something! Here he is the first day we got him
Here he is now, what a handsome boy he turned in to!
Anyway, yes I have been naughty and now my chest is feeling crappy. It could be coincidence, but it's more likely it's due to lack of pulmozyme. My sputum is thicker, darker, more difficult to shift, it sticks at the back of my throat and makes me feel sick and it sounds more meaty when I cough. I felt so tried yesterday, all day, everything I picked up felt so heavy, I feel asleep at about 9.20pm and slept like a rock last night until 10am this morning. Well apart from when I woke at midnight due to some women shouting in the street (I wear earplugs so she must have being very loud!) and a guy telling her to 'go the f**k to sleep', I live on such a lovely street!
Hopefully now I'm fully stocked on pulmozyme I'll start to feel better again. A few other issues I have been having are A) I am weeing for Britain, I can't stop! I go upto 8 times during the night! and twice during a physio session. Worried I have a weak bladder and now idea how to sort it out. B) My bones keep aching on a night, particularly my bones around where I sit and the tops of my legs. I feel like an old woman! It hurt so much the other week I was crying in pain as it hurt to walk, or to sit and when I coughed it was horrible. I ended up lying on my back with my legs up in the air to take the pressure off my sitting bones. Some pain killers seemed to help it and I had to lie on my front in bed which isn't great as I can't breathe very well when on my front! I have outpatients next week so will mention both things and see what the Doctor has to say.
I was given some interesting advice last Friday in my yoga session.... I was coughing alot during the class and afterwards the yoga teacher came over to me and told me one of the men in the class was a Doctor and suggested my cough could be caused by acid reflux (which is basically like indigestion) and to try take some gavisgon. She said she told him about me, not sure what that means, she knows I have CF but that doesn't mean she knows anything about it! But he insisted she tell me. I politely informed her I was coughing because of the mucus on my chest and I am on tablets slightly stronger than gavisgon for my reflux and there is nothing I can do about the coughing. All I want to do is go to yoga, get some exercise and mind my own business!
Pete did a 10k run on Sunday, the Jane Tomlison Run for All as part of his training for the Great North Run. Thanks to all of you that have already sponsored him but for those of you who haven't please do! Pete is working so hard to prepare himself and remember it all goes to the CF Trust who have recently had to announce they are having to put research on hold due to lack of funding http://www.bbc.co.uk/news/health-13643267 . Please click here to donate.
It's Alfies birthday today, he is 4 years old! He is heading to middle age now bless him, maybe he'll buy a sports car or something! Here he is the first day we got him
Here he is now, what a handsome boy he turned in to!
Thursday, 17 March 2011
Red Nose Day
I'm IV free! Wahoo! I swear this time around it has felt like they have lasted forever and I don't think I could have done another week!
I'm not sure what my lung function is as the physio gave me it in litres rather than a percentage, she said my fev1 was about the same, to me its either the same or not! Even a 1% increase is an improvement! She also said my fvc was up quite abit, again, not idea what 'abit' is! My sats are now sitting at 98-99% which is brilliant, they aren't that high very often!
I am feeling alot better, not as breathless or chesty and I wanted to come off the damn IV's and the Doctor had no concerns so wahoo! I've also been given some gel to put in my eyes to help lubricate them and some anti histamines, I asked for to cream to get rid of the dry skin and itchiness but I wasn't allowed! The Doctor thinks it's an allergy problem, I have to ring back if this stuff doesn't work. The Doctor also said to not wear my contact lenses for a week, yeah right! As if I am going to spend a week wearing my ugly glasses! The leaflet for the eye gel says to not wear contacts for 30 minutes after putting it in, so that is what I've been doing and wearing my glasses when at home. That's as far as I will go!
I started yoga again on Monday, it's so good to get back in to the swing of things. I'm going to try start swimming again now that it's getting warmer and lighter, it seems to give me the motivation to do it!
Our shower is driving me crazy, my first shower of two weeks was very disappointing...! Their is a leak in the pipe and also the thing you lift on the tap to make water come out of the shower rather than the bath taps, isn't working properly. So basically when you get a shower the pressure is pathetic as their is water spraying out of the pipe and leaking out of the tap. Pete and I's DIY skills are poor so I am dreading out attempts to fix this problem!
I'm going out for a meal with my friends tonight so should be good as there are a few things I want to get off my chest and get opinions on as well as catch up with them! Then tomorrow night I am volunteering to take calls for Red Nose Day! I think I will be one of the people you speak to if you ring up to donate money, not really sure! My friend works for British Gas and their call centre is taking some of the calls and he was asking friends and family to help out, so I though, why not? Wish me luck!
Thursday, 3 March 2011
Revenge of the Sputum
Well I'm starting to feel slightly better in myself but I can't really say things have improved chest wise yet. I'm coughing less but when I do cough it's so productive and gloopy that I can't budge it especially since my airways seem to tighten up. I went to the toilets in Wetherspoons today which were upstairs and when I got into the cubicle I coughed so hard I started retching and proceeded to bring up some sputum unexpectedly. Luckily none went on my clothes and I grabbed a tissue before it projected out of my mouth! Not the highlight of my day but never mind!
I also kept waking up last night feeling like I couldn't breathe and taking big gasps on air in. It felt like there was a blanket of sputum over my airways, and when I breathed in it made a really loud wheezing noise and loosened the blanket but then when I tried to cough the sputum up I couldn't! In addition to this my sputum has had tiny dots of blood in it, nothing serious but it's still worth noting. Needless to say there is some freaky stuff going on and I just want to get back to normal please!
Yesterday I went to Scope and got a free mini massage. They arranged for a lady to come and do a taster session and I asked her to focus on my shoulders and back as they are tight from all the coughing. I'm thinking about booking a session as it might help with my posture and help me cough better. Just depends on if I can afford it really! My yoga teacher suggested I get a massage to help relax the tension since I can't go to yoga classes whilst on my IVs, so maybe I will!
Today I was supposed to meet my new mentee for an introduction session which is why I was at Wetherspoons, but she didn't turn up. So instead me and the other lady from Scope had some lunch so it wasn't a wasted journey! I had a curry that tasted more like a chinese, very strange!
Other than that I've been reading my book and learning quite abit about the first world war in the process and doing my knitting! I'm ashamed to say I haven't taken Alfie out for a walk yet this week, but at the end of the day that's why we got a small dog that doesn't need much exercise. A good run around the garden after the birds keeps him fit and I have promised him I will take him for a walk tomorrow! That's about my week so far! See you later folks!
I also kept waking up last night feeling like I couldn't breathe and taking big gasps on air in. It felt like there was a blanket of sputum over my airways, and when I breathed in it made a really loud wheezing noise and loosened the blanket but then when I tried to cough the sputum up I couldn't! In addition to this my sputum has had tiny dots of blood in it, nothing serious but it's still worth noting. Needless to say there is some freaky stuff going on and I just want to get back to normal please!
Yesterday I went to Scope and got a free mini massage. They arranged for a lady to come and do a taster session and I asked her to focus on my shoulders and back as they are tight from all the coughing. I'm thinking about booking a session as it might help with my posture and help me cough better. Just depends on if I can afford it really! My yoga teacher suggested I get a massage to help relax the tension since I can't go to yoga classes whilst on my IVs, so maybe I will!
Today I was supposed to meet my new mentee for an introduction session which is why I was at Wetherspoons, but she didn't turn up. So instead me and the other lady from Scope had some lunch so it wasn't a wasted journey! I had a curry that tasted more like a chinese, very strange!
Other than that I've been reading my book and learning quite abit about the first world war in the process and doing my knitting! I'm ashamed to say I haven't taken Alfie out for a walk yet this week, but at the end of the day that's why we got a small dog that doesn't need much exercise. A good run around the garden after the birds keeps him fit and I have promised him I will take him for a walk tomorrow! That's about my week so far! See you later folks!
Monday, 31 January 2011
Knitting Needles
I finished my IVs on Friday and even though my lung function has not actually increased, in fact it is 1% lower at 41%, I managed to escape! I went on my IV's because I had a cold and it was affecting my chest, not because I'd had a fall in lung function, well I had, not nothing below my normal range. So since my chest is feeling alot better and my weight is up abit at 55kg, the doctor and I think the lung function will increase once I am exercising again and back to feeling myself.
I have yoga this evening so I will see how breathless I get, which will probably be a lot since I haven't been regularly since before Christmas! I can usually tell if its fitness related or CF related though. Not sure how, but I can tell because I am such an expert.... haha!
Pete and I went to see Black Swan on Saturday night, warning, there are some very rude scenes in that film that I was not expecting! Pete thought it was rubbish but I thought it was quite good in a weird way, don't think I'll be buying the DVD though. Go see the Kings Speech if you haven't seen it, it's much better!
My knitting it going well, I got the bring it home with me and I've been doing it whilst watching the TV, I also took it to the hospital with me on Friday to do whilst waiting. The needles were poking out of my bag when walking around and I was worried I may get told off by hospital security, I'm not sure how rules around knitting needles possibly been used a weapon stand, personally I think it's possible since I've already nearly had one incident with Alfie....! Apparently next week we are moving on to pearl stitch, how very exciting, I am onto the next level!
I have yoga this evening so I will see how breathless I get, which will probably be a lot since I haven't been regularly since before Christmas! I can usually tell if its fitness related or CF related though. Not sure how, but I can tell because I am such an expert.... haha!
Pete and I went to see Black Swan on Saturday night, warning, there are some very rude scenes in that film that I was not expecting! Pete thought it was rubbish but I thought it was quite good in a weird way, don't think I'll be buying the DVD though. Go see the Kings Speech if you haven't seen it, it's much better!
My knitting it going well, I got the bring it home with me and I've been doing it whilst watching the TV, I also took it to the hospital with me on Friday to do whilst waiting. The needles were poking out of my bag when walking around and I was worried I may get told off by hospital security, I'm not sure how rules around knitting needles possibly been used a weapon stand, personally I think it's possible since I've already nearly had one incident with Alfie....! Apparently next week we are moving on to pearl stitch, how very exciting, I am onto the next level!
Friday, 7 January 2011
Niceness doesn't get you anywhere!
Well yesterday I called up respironics about my i-neb disks again and decided this time I was going to take a more nasty approach, been nice doesn't get you anywhere and now I have proof.
I called up at about 4.15pm and complained I still hadn't got my disks and now I couldn't do my treatment, she told me she would order some by courier tomorrow as it was too late today and they would arrive by Saturday, was that OK with me? I grunted back ' well I don't have much choice do I?', then surprise surprise she said she would see if she could get them sent out today! I told her 'that would be great thanks!' and left it with her.
This morning at about 9am a fedex man delivered me some i-neb disks, wahay! Then at about 11.45am the postman delivered the other disks I have been waiting for since the 23rd December. So now I have loads of disks, wahoo! So now I like the respironics lady again, I guess she just needed a little nudge! Typical though that the other ones then got delivered as well!
We got our wall insulation fitted yesterday, he was supposed to arrive between 10 and 12 and came at exactly 12, I was literally dialling the number to see where he had got to and he turned up! It took him about 3 hours, they drill holes in the wall they pump in the insulation then seal the holes back up. We now need to get our loft done but haven't heard anything from warmfront yet regarding this. If you receive any form of benefit, (it doesn't necessarily have to be disability related) you should see if you are eligible. They are not taking applications at the moment, as are way behind, we applied in May! But it says they will be taking applications again in April. You could get a new boiler for free! So check it out!
I had yoga this morning for the first time since before Christmas and my god it was hard work! It wasn't even a difficult class! In fact towards the end I started to feel very weak and abit lightheaded which can't be good! Not sure if it's my body or my fitness because I've had two weeks off. On a good note though I did get to wear my new kit that Pete bought me for Christmas!
I had a bit of trouble getting out of the gym carpark as it's decided to snow again today and everywhere is covered, it seems there is no grit and its settling very well and quickly. To leave the gym is uphill so I was sliding around and doing a lot of wheel spinning but I got there in the end! I saw some idiot in the carpark driving around like there was no snow at all, he ended up skidding and was about an inch away from hitting a post. So let that be a lesson ladies and gents, the snow is not to be messed with!
I called up at about 4.15pm and complained I still hadn't got my disks and now I couldn't do my treatment, she told me she would order some by courier tomorrow as it was too late today and they would arrive by Saturday, was that OK with me? I grunted back ' well I don't have much choice do I?', then surprise surprise she said she would see if she could get them sent out today! I told her 'that would be great thanks!' and left it with her.
This morning at about 9am a fedex man delivered me some i-neb disks, wahay! Then at about 11.45am the postman delivered the other disks I have been waiting for since the 23rd December. So now I have loads of disks, wahoo! So now I like the respironics lady again, I guess she just needed a little nudge! Typical though that the other ones then got delivered as well!
We got our wall insulation fitted yesterday, he was supposed to arrive between 10 and 12 and came at exactly 12, I was literally dialling the number to see where he had got to and he turned up! It took him about 3 hours, they drill holes in the wall they pump in the insulation then seal the holes back up. We now need to get our loft done but haven't heard anything from warmfront yet regarding this. If you receive any form of benefit, (it doesn't necessarily have to be disability related) you should see if you are eligible. They are not taking applications at the moment, as are way behind, we applied in May! But it says they will be taking applications again in April. You could get a new boiler for free! So check it out!
I had yoga this morning for the first time since before Christmas and my god it was hard work! It wasn't even a difficult class! In fact towards the end I started to feel very weak and abit lightheaded which can't be good! Not sure if it's my body or my fitness because I've had two weeks off. On a good note though I did get to wear my new kit that Pete bought me for Christmas!
I had a bit of trouble getting out of the gym carpark as it's decided to snow again today and everywhere is covered, it seems there is no grit and its settling very well and quickly. To leave the gym is uphill so I was sliding around and doing a lot of wheel spinning but I got there in the end! I saw some idiot in the carpark driving around like there was no snow at all, he ended up skidding and was about an inch away from hitting a post. So let that be a lesson ladies and gents, the snow is not to be messed with!
Friday, 17 December 2010
Slightly Anemic
I had outpatients today and my fev1 is still 46% so I'm happy about that. I've been put on some iron tablets as I'm slightly anemic, apparently they might make my stools black, nice....! I looked what anemia causes and it says it can cause fatigue and weakness, both of which I often get but I assumed it was just the side affects of medication, low blood sugars or just infection. It still could be these but maybe lack of iron isn't helping! I also have to leave 6 weeks instead of 4 weeks between my month on of voriconazole, as they are worried I will become resistant to it and apparently all anti-fungals are from the same family so if the fungus builds resistance to one it can become resistant to all of them. My weight is 54.4 kg, so all in all a good outpatients appointment. I had my port flushed and it even bled back, its seems to have bled back the last few times, so maybe it's finally starting to behave!
I'm really enjoying the yoga classes on a Friday now, they now do two classes back to back as demand was too high for just one class. This means that now there is less than 10 people in the class I go to, so the teacher gives us more attention and keeps saying I'm good at stuff which obviously is good reinforcement to keep me going back! I'm starting to build some strength in my upper arms now and starting to get some muscles haha!
I'm really enjoying the yoga classes on a Friday now, they now do two classes back to back as demand was too high for just one class. This means that now there is less than 10 people in the class I go to, so the teacher gives us more attention and keeps saying I'm good at stuff which obviously is good reinforcement to keep me going back! I'm starting to build some strength in my upper arms now and starting to get some muscles haha!
Monday, 29 November 2010
Parking and Walking
Well our boiler is fixed and we have heating in our bedroom, wahoo!
I haven't been up to much really, I'm trying to go to yoga twice a week as I can't seem to be able to force myself to go swimming when it's cold! The usual has happened at the gym, it gets cold and snows and everyone parks in the disabled bays! So when I went last Monday the only spaces left were ones right at the back of the carpark, so I parked right in front of the entrance, halfway on the pavement. They clearly have no intention of doing anything about people parking in the spaces, so I shall park there from now on if necessary.
I started my voluntary work again on Friday and have a new mentee, she seems nice and I'm meeting her again in two weeks. We were chatting for about two hours!
On Friday Pete and I met my brother and his girlfriend for a few drinks at the pub, I got to drive Pete's car for the first time since he got it as I was the designated driver for the evening. Pete thinks his car is better than mine because it's a BMW, well now it's snowing we will see who has the better car since his is a rear wheel drive and was sliding around on our road yesterday, he is working form home today which means I have to put up with him haha.
We went for a meal yesterday for late lunch/early tea. It started to snow again whilst we were driving around and we did consider going back home, however we were too hungry! We had to park near the restaurant as obviously I cannot walk far at all in this type of weather, we literally parked less than five minutes away and on the way back I was coughing really hard. So we parked on double yellow as with a disabled badge you can park on double yellow as long as your car isn't causing an obstruction which is wasn't as far as we could tell. When we got back, we had a parking fine!! A ticket officer was walking past so Pete queried the ticket, the man said there was yellow lines on the pavement which means nobody can park there, I know this and if we had seen them we wouldn't have parked there but they were completely covered in snow! The ticket man said if we took photos and sent an email we would get the ticket removed (he hadn't issued it so couldn't remove it), so fingers crossed it gets cancelled!
Sometimes I wonder why everyone seems to make parking so difficult for people with disabilities, do people think disabled people disappear in winter so their spaces are available for others to use, or that we can see things through the snow? Perhaps I shouldn't be trying to have a normal life and stay inside all winter. All I want to do is go to yoga or go for meal without having to walk far and end up coughing my guts up!
I imagine a few people wonder why I can't walk far from my car but then I can take Alfie for a walk. So let me explain........ When I take Alfie for a walk I wrap up really warm, I even put tights under my jeans and wear thermal socks etc. I do cough at first because of the temperature change, but I'm expecting it, I am prepared and I accept it as I'm going for a walk and I know in the long run it's good for me to get the exercise. Afterwards I come home, get a warm drink and sit down and recover.
When I'm out and about doing the things I do, I'm not wrapped up as well, I'm constantly going into different temperatures so my chest can't adjust. I can't recover and it's not nice to be constantly having a coughing fit and people looking at me and commenting on my cough.
Think of it like this - people go to the gym and jog for half an hour on the treadmill, but they wouldn't want to jog everywhere would they? Well walking Alfie is my jogging, but I don't want to be 'jogging' all the time do I?!
I haven't been up to much really, I'm trying to go to yoga twice a week as I can't seem to be able to force myself to go swimming when it's cold! The usual has happened at the gym, it gets cold and snows and everyone parks in the disabled bays! So when I went last Monday the only spaces left were ones right at the back of the carpark, so I parked right in front of the entrance, halfway on the pavement. They clearly have no intention of doing anything about people parking in the spaces, so I shall park there from now on if necessary.
I started my voluntary work again on Friday and have a new mentee, she seems nice and I'm meeting her again in two weeks. We were chatting for about two hours!
On Friday Pete and I met my brother and his girlfriend for a few drinks at the pub, I got to drive Pete's car for the first time since he got it as I was the designated driver for the evening. Pete thinks his car is better than mine because it's a BMW, well now it's snowing we will see who has the better car since his is a rear wheel drive and was sliding around on our road yesterday, he is working form home today which means I have to put up with him haha.
We went for a meal yesterday for late lunch/early tea. It started to snow again whilst we were driving around and we did consider going back home, however we were too hungry! We had to park near the restaurant as obviously I cannot walk far at all in this type of weather, we literally parked less than five minutes away and on the way back I was coughing really hard. So we parked on double yellow as with a disabled badge you can park on double yellow as long as your car isn't causing an obstruction which is wasn't as far as we could tell. When we got back, we had a parking fine!! A ticket officer was walking past so Pete queried the ticket, the man said there was yellow lines on the pavement which means nobody can park there, I know this and if we had seen them we wouldn't have parked there but they were completely covered in snow! The ticket man said if we took photos and sent an email we would get the ticket removed (he hadn't issued it so couldn't remove it), so fingers crossed it gets cancelled!
Sometimes I wonder why everyone seems to make parking so difficult for people with disabilities, do people think disabled people disappear in winter so their spaces are available for others to use, or that we can see things through the snow? Perhaps I shouldn't be trying to have a normal life and stay inside all winter. All I want to do is go to yoga or go for meal without having to walk far and end up coughing my guts up!
I imagine a few people wonder why I can't walk far from my car but then I can take Alfie for a walk. So let me explain........ When I take Alfie for a walk I wrap up really warm, I even put tights under my jeans and wear thermal socks etc. I do cough at first because of the temperature change, but I'm expecting it, I am prepared and I accept it as I'm going for a walk and I know in the long run it's good for me to get the exercise. Afterwards I come home, get a warm drink and sit down and recover.
When I'm out and about doing the things I do, I'm not wrapped up as well, I'm constantly going into different temperatures so my chest can't adjust. I can't recover and it's not nice to be constantly having a coughing fit and people looking at me and commenting on my cough.
Think of it like this - people go to the gym and jog for half an hour on the treadmill, but they wouldn't want to jog everywhere would they? Well walking Alfie is my jogging, but I don't want to be 'jogging' all the time do I?!
Thursday, 14 October 2010
Not Much To Say!
I'm feeling alot better this week, just been taking it easy really.
I went swimming last Friday and only managed 16 lengths, I was just coughing so much I gave in, in the end. I went again last night and did 18 lengths with the same problem. I think I need to make sure I do my evening physio before I go, so there isn't as much moving around on my lungs.
I rang the gym on Monday morning at 7.30am to book myself in yoga and it was fully booked! The gym annoys me so much sometimes, they keep accepting new members but then don't put on any extra classes! So now I am going to try to go to Friday mornings class this week, as Monday and Friday are the only classes with the yoga teacher I like. My brothers girlfriend works at the gym so she is going to put my name on the list tonight, sneaky!
We are having a Halloween party this year so I'm stocking up on scary props, one involves a big, furry spider that I'm going to hide somewhere to shock people, hehe I'm so evil. I'm hopefully going to dress at the girl from the Grudge, I'll be too scared to look in the mirror if I get it right!
Sorry this a boring post, I don't seem to have much to say!
I went swimming last Friday and only managed 16 lengths, I was just coughing so much I gave in, in the end. I went again last night and did 18 lengths with the same problem. I think I need to make sure I do my evening physio before I go, so there isn't as much moving around on my lungs.
I rang the gym on Monday morning at 7.30am to book myself in yoga and it was fully booked! The gym annoys me so much sometimes, they keep accepting new members but then don't put on any extra classes! So now I am going to try to go to Friday mornings class this week, as Monday and Friday are the only classes with the yoga teacher I like. My brothers girlfriend works at the gym so she is going to put my name on the list tonight, sneaky!
We are having a Halloween party this year so I'm stocking up on scary props, one involves a big, furry spider that I'm going to hide somewhere to shock people, hehe I'm so evil. I'm hopefully going to dress at the girl from the Grudge, I'll be too scared to look in the mirror if I get it right!
Sorry this a boring post, I don't seem to have much to say!Wednesday, 6 October 2010
Treatment Regime
I'm feeling better this week although I'm still having problems sleeping. I don't know what it is really but I'm having crazy dreams and waking up every 1-2 hours and every time I wake up I have to go to the toilet, that's just a thing with me, if I wake up, must make a visit to the bathroom. I don't know if I wake up because I need the toilet or its some compulsive thing I have! Anyway.... I'm still sweating but not because I'm warm and I can hear weird noises in my chest which isn't helped by the fact I have to use ear earplugs. I didn't wake up until 12 on Sunday and then it's been about 9.30 the other days, I have to be careful though because you can fall into a pattern of getting up late all the time and end up going to bed late, then before you know it your whole sleeping pattern is messed up!
I went to Yoga this Monday as usual and I didn't struggle as much this week, so maybe this is a sign my chest is slightly better? Or the class was easy, who knows! I really need to get back into swimming, I didn't go last week as I didn't feel up to it but I'm determined to go tomorrow, no excuses! If I don't go, tell me off!
I've altered my physio/neb regime as for the past few weeks it's hasn't been working for me. I usually do my saline before my evening physio, then my pulmozyme after, then tobi before I go to bed. However sometimes I don't do my physio until 9pm, then the pulmozyme is afterwards so say 9.30pm, which means then I can't do my tobi until after 10.30pm as there has to be at least an hours gap. Well we usually go to bed about 10-10.30pm so it was causing problems! Also if I do my physio too early in the evening I find my chest is full again by the time I go to bed, so doing it later is better.
So instead I am now doing my pulmozyme at about 6-7pm then my saline and physio an hour later or more later (you have to leave an hour after doing pulmozyme before you can do physio to let it work), then I can do my tobi straight after my physio. So now my physio regime is like this:
AM
(whatever time I get up) Saline then physio then tobi
PM
6-7pm Pulmozyme
8-9pm Saline then physio then tobi
I swear it is seriously starting to feel like a military regime, there is so much stuff to do and think about. The good thing about this new regime is that is gets everything out of the way if I'm going out somewhere, like on Saturday with my old regime I would have had to do my Tobi neb when I got in from my night out. But this way I got it all done before I went out as I did it at around 5-6pm, I don't know why I've never done it before really!
I went to Yoga this Monday as usual and I didn't struggle as much this week, so maybe this is a sign my chest is slightly better? Or the class was easy, who knows! I really need to get back into swimming, I didn't go last week as I didn't feel up to it but I'm determined to go tomorrow, no excuses! If I don't go, tell me off!
I've altered my physio/neb regime as for the past few weeks it's hasn't been working for me. I usually do my saline before my evening physio, then my pulmozyme after, then tobi before I go to bed. However sometimes I don't do my physio until 9pm, then the pulmozyme is afterwards so say 9.30pm, which means then I can't do my tobi until after 10.30pm as there has to be at least an hours gap. Well we usually go to bed about 10-10.30pm so it was causing problems! Also if I do my physio too early in the evening I find my chest is full again by the time I go to bed, so doing it later is better.
So instead I am now doing my pulmozyme at about 6-7pm then my saline and physio an hour later or more later (you have to leave an hour after doing pulmozyme before you can do physio to let it work), then I can do my tobi straight after my physio. So now my physio regime is like this:
AM
(whatever time I get up) Saline then physio then tobi
PM
6-7pm Pulmozyme
8-9pm Saline then physio then tobi
I swear it is seriously starting to feel like a military regime, there is so much stuff to do and think about. The good thing about this new regime is that is gets everything out of the way if I'm going out somewhere, like on Saturday with my old regime I would have had to do my Tobi neb when I got in from my night out. But this way I got it all done before I went out as I did it at around 5-6pm, I don't know why I've never done it before really!
Wednesday, 8 September 2010
Wedding Anniversary!
I've added an extra icon on the side of my blog to show what I am reading at the moment. I have copied this off another blog and thought it was a good idea as if you are like me, you enjoy reading but never know what to read! My local library is not the type you browse through, you have to tell them what you would like to borrow and they will order it in for you. This means you have to know what you want to read, therefore I like to know what others are reading to give me ideas! The book I am reading at the moment is mine, not from the library and I've already read it once but I absolutely love it so reading it again! I just finished 'If You Could See Me Now' by Cecilia Ahern (author of PS I Love You).
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Big news, I have changed my hair colour! My hair is now a strawberry blonde colour, which is not ginger as people keep saying it must be. My aim was for a very light brown with a pinky colour to it, it's stayed blonder than I hoped, but that is because of the bleach still in my hair, it just needs to grow out, you can see the proper colour on my roots where there is no bleach! I tried to take some pictures but they don't really do the colour justice
Since I finished my IVs last week I have been feeling tired very easily, in fact I am feeling quite annoyed about it. I already seem more chesty and am getting breathless easily. I went to yoga on Monday and I got so breathe less I thought I was going to have to sit out for awhile, we were doing all these stretches stood up, called warrior one, crescent moon etc
I always find them harder as it is, but all I could do was think about trying to breathe and then the yoga teacher was moving my arms and hips to get me to do the positions correctly and I just wanted to scream at her 'I can't breathe never mind do the bloody stretches correctly!'. I pushed myself to keep going though as I don't want to be the odd one out, I hate appearing weak! So even though I felt like my face was going to explode because it was red from lack of oxygen or something and I was breaking into a sweat, I kept going and managed to not collapse in a heap. After relaxation I swear I had to shout at myself in my head to actually get up and drive home, then the rest of the night I just laid around as I had no energy.
So no I am not happy with my stupid CF this week, especially since we are going to the Lake District for our wedding anniversary and were planning to go on some walks.
Yes that's right, on Saturday Pete and I will have being husband and wife for a year! I can't believe it, it's gone so fast. I feel so lucky for having bagged myself such a great husband and I can safely say that marriage has not somehow made our relationship deteriorate, as all these TV programmes would make you think. According to them we should be getting divorced by now right...?! I love Pete so much and I can't wait to spend the next year with him, and the year after that and forever!
Here is a little video I have made for us
Friday, 3 September 2010
Smooth 2 weeks
I finished my IV's yesterday and I think it's the first time since I can remember that I've had a smooth course of IV's and have managed to maintain a relatively normal life whilst on them!
My port hasn't itched or being sore, the only problem I had is when my needle was changed half way through, the area hurt for a day or two afterwards and towards the end, the muscle was starting to feel tender. The dressing came off yesterday and needle out and there were no lumps or bumps, weeping or crust, just abit of flaky skin and some redness from ripping off the dressing. Wahoo! So we have sorted that problem which is great!
I haven't felt particularly poorly whilst on the IV's, abit tired and groggy but nothing compared to usual. There a few things that may have contributed to this a) I have tried to stay well hydrated through drinking powerades, they also give you energy b) I have taken anti sickness tablets (ondansetron) before every dose of IVs c) I have 2gx3 a day ceftaz in the first week then upped to 3gx3 a day in the second week. Obviously there could be other factors such as what was making me require IVs in the first place, but I think the listed things have helped.
Pete said something like this the other night...
Pete: 'did they increase your IV to 3g?'
Me: 'yes why?'
Pete 'well why aren't you tired then? usually when you are on your IV's you are sleeping by now but instead you are jabbering on, I like getting the peace and quiet'
Charming...! But a perfect illustration of how much better these IVs have gone!
My weight has increased to 56kg which I am not surprised with, I can't stop eating lately, I'm going to turn into a right fattie!
So at the end of IV's my fev1 is 39% which I am disappointed with but hopefully by my next outpatients appointment it will have gone up abit more. I was hoping the hypertonic saline might have helped it increase as I've heard stories of it helping people get their lung function up by 10%!
Since I finished my IV's yesterday I have felt chesty already, sometimes I wonder if it's in my head! However I went to yoga this morning and was coughing whereas I did some more bulb planting on Wednesday and didn't cough at all. I also have gotten a headache yesterday and today and it feels like its my sinuses. It's almost like I've stopped the IVs and the mucus is building up already!
I'm going to see a scary film with my friend this evening, I watched the Grudge 3 the other night and it wasn't even that scary however when I went to the toilet in the night I saw something white out of the corner of my eye and ran back into bed! I get scared so easy, so maybe this isn't such a good idea.....
My port hasn't itched or being sore, the only problem I had is when my needle was changed half way through, the area hurt for a day or two afterwards and towards the end, the muscle was starting to feel tender. The dressing came off yesterday and needle out and there were no lumps or bumps, weeping or crust, just abit of flaky skin and some redness from ripping off the dressing. Wahoo! So we have sorted that problem which is great!
I haven't felt particularly poorly whilst on the IV's, abit tired and groggy but nothing compared to usual. There a few things that may have contributed to this a) I have tried to stay well hydrated through drinking powerades, they also give you energy b) I have taken anti sickness tablets (ondansetron) before every dose of IVs c) I have 2gx3 a day ceftaz in the first week then upped to 3gx3 a day in the second week. Obviously there could be other factors such as what was making me require IVs in the first place, but I think the listed things have helped.
Pete said something like this the other night...
Pete: 'did they increase your IV to 3g?'
Me: 'yes why?'
Pete 'well why aren't you tired then? usually when you are on your IV's you are sleeping by now but instead you are jabbering on, I like getting the peace and quiet'
Charming...! But a perfect illustration of how much better these IVs have gone!
My weight has increased to 56kg which I am not surprised with, I can't stop eating lately, I'm going to turn into a right fattie!
So at the end of IV's my fev1 is 39% which I am disappointed with but hopefully by my next outpatients appointment it will have gone up abit more. I was hoping the hypertonic saline might have helped it increase as I've heard stories of it helping people get their lung function up by 10%!
Since I finished my IV's yesterday I have felt chesty already, sometimes I wonder if it's in my head! However I went to yoga this morning and was coughing whereas I did some more bulb planting on Wednesday and didn't cough at all. I also have gotten a headache yesterday and today and it feels like its my sinuses. It's almost like I've stopped the IVs and the mucus is building up already!
I'm going to see a scary film with my friend this evening, I watched the Grudge 3 the other night and it wasn't even that scary however when I went to the toilet in the night I saw something white out of the corner of my eye and ran back into bed! I get scared so easy, so maybe this isn't such a good idea.....
Thursday, 19 August 2010
Hypertonic Saline
Well as I said on Monday, I started IV's today.
At outpatients my fev1 was 39% so only down 3% from when I last finished my IV's, however my FVC is down by 15%. For those who don't know, Fev1 is how much you blow out in the first second, FVC is how much in total your lungs hold. My FVC was down to 55%, I don't know why there is such a large difference in the two, I think it's because they measure different airways and clearly there is a difference in my airways. If anyone can explain it to me, it would be great! Also anyone who doesn't understand the % stuff, its a % of how much a healthy person my age and height should get. So I think in my FEV1, I blew out 1.4 litres of air which is 39% of what it should be, obviously the amount I should get is an estimate, that's how people can get a FEV1 of 110% because they are blowing out more air than expected.
Fev1 is a more important indicator of how you are doing but obviously FVC is important too.
Anyway because my lung function was slightly down and this cold is making me feel tired and very chesty, plus the trip to London has tired out my poor little lungs, it was decided I should go on IV's. Also Pete and I are going away in September so I want to feel my best by then!
It wasn't a good start today, I only went and drove to the wrong bloody hospital! Outpatients is at Seacroft hospital whereas the ward is at St James, so I went to Seacroft on Monday and then today because I must have turned my brain off whilst driving I just went there on autopilot. St James is about 15 minutes from Seacroft so it wasn't too bad, but I did feel like a right muppet!
My Fev1 was 35% today, so a good job I am going on IV's, but also a good example of how much it can fluctuate day to day. I think I have to face facts that my lung function tends to sit in the 30% range these days rather than the 40%, which is scary to be honest, but i'm going to try my best to at least keep it in the high 30%-low 40% range.
I am going on tobramycin which is once a day and takes an hour to go through and ceftaz which is three times a day and takes about 30-40 minutes to go through. I also tried hypertonic saline today as I told the physio I felt like my physio just wasn't clearing my chest and she agreed an hour to hour and a half of physio a day is enough for any person. So I am now on hypertonic saline which I do before physio through my I-neb, so twice a day. It helps loosen the mucus by creating moisture or something or other, I didn't really listen to her! So now I am doing five nebulisers a day as I still have to do all my others, ekk! Everyone says it tastes horrible but I didn't think it was too bad, she said it's better through the I-neb as it only releases the mist when you breathe in, so it isn't swirling around in your mouth. It does make the back of your throat taste salty, because that's what it is, but it soon wears off afterwards, and it defiantly makes you cough! I'm on 7% rather than 6% as the research suggests 7% works better and I also get it in little nebules which apparently is quite new. I can do it upto 4 times a day if my chest feels really bad, but I think I'll stick to just before my physio sessions for now. I did my first dose at the hospital as they have to check it doesn't make you wheezy, she just checked my Fev1 before and after I'd nebulised it and my Fev1 only fell by 1% so it didn't make me particularly wheezy.
I saw a new doctor today and I didn't get a very good first impression of him. He looks quite young and he didn't even tell me who he was or anything. Then he just went straight into looking at my IVs and asked me if I was having my ceftaz 'TDS?', erm how do I know what that is! Then he referred to a prescription as a P something or other, erm hello I am a patient and don't know all your medical terms! Then he got my sputum pot I had by my side because I had been coughing after doing the hypertonic saline and just took the lid off and looked in! Now there are things you don't do and you don't look at someones sputum you have known for about 2 minutes without at least asking first. I just felt like it was an invasion of my privacy or something, no other doctor has ever done that. Maybe he was abit keen and I'm being harsh, he did seem very eager, I think this may have caused him to appear slightly rude. To be a doctor you have to good at the medical side obviously, but also at the communication with patients!
On Monday I went to yoga and it was like the teacher has read my mind. My back and shoulders have been hurting and feeling tense from coughing and getting out of breathe, and I've been hunching slightly as a result. I arrived at yoga and she told us we were going to work on our posture and spine through stretches, yipee! I'm not kididng you, some of the stretches felt amazing and by the end my back and shoulders felt so much better and I felt like my chest had just opened up. I really would recommend yoga to people with CF, its helps with your posture, your breathing, and some of it is quite hard work so gets some cardio in there! Then there is relaxation at the end which helps you de-stress and calm your mind, which I find can help me get rid of headaches. I've tried pilates and it's not the same, I didn't like that at all, he kept going on about my inner core and I didn't feel it helped me in anyway. But yoga is a big yes, go on, try it!
At outpatients my fev1 was 39% so only down 3% from when I last finished my IV's, however my FVC is down by 15%. For those who don't know, Fev1 is how much you blow out in the first second, FVC is how much in total your lungs hold. My FVC was down to 55%, I don't know why there is such a large difference in the two, I think it's because they measure different airways and clearly there is a difference in my airways. If anyone can explain it to me, it would be great! Also anyone who doesn't understand the % stuff, its a % of how much a healthy person my age and height should get. So I think in my FEV1, I blew out 1.4 litres of air which is 39% of what it should be, obviously the amount I should get is an estimate, that's how people can get a FEV1 of 110% because they are blowing out more air than expected.
Fev1 is a more important indicator of how you are doing but obviously FVC is important too.
Anyway because my lung function was slightly down and this cold is making me feel tired and very chesty, plus the trip to London has tired out my poor little lungs, it was decided I should go on IV's. Also Pete and I are going away in September so I want to feel my best by then!
It wasn't a good start today, I only went and drove to the wrong bloody hospital! Outpatients is at Seacroft hospital whereas the ward is at St James, so I went to Seacroft on Monday and then today because I must have turned my brain off whilst driving I just went there on autopilot. St James is about 15 minutes from Seacroft so it wasn't too bad, but I did feel like a right muppet!
My Fev1 was 35% today, so a good job I am going on IV's, but also a good example of how much it can fluctuate day to day. I think I have to face facts that my lung function tends to sit in the 30% range these days rather than the 40%, which is scary to be honest, but i'm going to try my best to at least keep it in the high 30%-low 40% range.
I am going on tobramycin which is once a day and takes an hour to go through and ceftaz which is three times a day and takes about 30-40 minutes to go through. I also tried hypertonic saline today as I told the physio I felt like my physio just wasn't clearing my chest and she agreed an hour to hour and a half of physio a day is enough for any person. So I am now on hypertonic saline which I do before physio through my I-neb, so twice a day. It helps loosen the mucus by creating moisture or something or other, I didn't really listen to her! So now I am doing five nebulisers a day as I still have to do all my others, ekk! Everyone says it tastes horrible but I didn't think it was too bad, she said it's better through the I-neb as it only releases the mist when you breathe in, so it isn't swirling around in your mouth. It does make the back of your throat taste salty, because that's what it is, but it soon wears off afterwards, and it defiantly makes you cough! I'm on 7% rather than 6% as the research suggests 7% works better and I also get it in little nebules which apparently is quite new. I can do it upto 4 times a day if my chest feels really bad, but I think I'll stick to just before my physio sessions for now. I did my first dose at the hospital as they have to check it doesn't make you wheezy, she just checked my Fev1 before and after I'd nebulised it and my Fev1 only fell by 1% so it didn't make me particularly wheezy.
I saw a new doctor today and I didn't get a very good first impression of him. He looks quite young and he didn't even tell me who he was or anything. Then he just went straight into looking at my IVs and asked me if I was having my ceftaz 'TDS?', erm how do I know what that is! Then he referred to a prescription as a P something or other, erm hello I am a patient and don't know all your medical terms! Then he got my sputum pot I had by my side because I had been coughing after doing the hypertonic saline and just took the lid off and looked in! Now there are things you don't do and you don't look at someones sputum you have known for about 2 minutes without at least asking first. I just felt like it was an invasion of my privacy or something, no other doctor has ever done that. Maybe he was abit keen and I'm being harsh, he did seem very eager, I think this may have caused him to appear slightly rude. To be a doctor you have to good at the medical side obviously, but also at the communication with patients!
On Monday I went to yoga and it was like the teacher has read my mind. My back and shoulders have been hurting and feeling tense from coughing and getting out of breathe, and I've been hunching slightly as a result. I arrived at yoga and she told us we were going to work on our posture and spine through stretches, yipee! I'm not kididng you, some of the stretches felt amazing and by the end my back and shoulders felt so much better and I felt like my chest had just opened up. I really would recommend yoga to people with CF, its helps with your posture, your breathing, and some of it is quite hard work so gets some cardio in there! Then there is relaxation at the end which helps you de-stress and calm your mind, which I find can help me get rid of headaches. I've tried pilates and it's not the same, I didn't like that at all, he kept going on about my inner core and I didn't feel it helped me in anyway. But yoga is a big yes, go on, try it!
Wednesday, 12 May 2010
Disappointment
We had our first appointment with the IVF doctor yesterday, it didn't go too well and we have alot to think about and to possibly try get referred to another doctor. You can read the full story on my other private blog, click here. Let me know if you want me to send you an invitation to be able to read it.
On to other things....
The nurse came out to flush my port yesterday. Usually I go to the hospital to get it flushed but she offered to come out to me which was nice, my experience for this port flush was alot better than last time! I told her about my last experience and she said that particular nurse was leaving, glad to hear it! I think I am definitely allergic to the liquid they use to clean my port before it is flushed, the port area itched all afternoon and it can't be the dressing as I had none on, it was only a flush so the needle goes in, some hepflush is pushed in and then the needle comes out. I'm going to try see if a different cleaning liquid can be used for when I next go on IV's, although there are probably strict rules saying they can only use a certain one!
Yoga on Monday was hard work. I got really out of breath, thought I might have to stop at one point but I managed to keep going. The teacher even said it had been a difficult one so that made me feel abit better! I'm trying aqua aerobics tonight, I'm really nervous! Wish me luck!
On to other things....
The nurse came out to flush my port yesterday. Usually I go to the hospital to get it flushed but she offered to come out to me which was nice, my experience for this port flush was alot better than last time! I told her about my last experience and she said that particular nurse was leaving, glad to hear it! I think I am definitely allergic to the liquid they use to clean my port before it is flushed, the port area itched all afternoon and it can't be the dressing as I had none on, it was only a flush so the needle goes in, some hepflush is pushed in and then the needle comes out. I'm going to try see if a different cleaning liquid can be used for when I next go on IV's, although there are probably strict rules saying they can only use a certain one!
Yoga on Monday was hard work. I got really out of breath, thought I might have to stop at one point but I managed to keep going. The teacher even said it had been a difficult one so that made me feel abit better! I'm trying aqua aerobics tonight, I'm really nervous! Wish me luck!
Wednesday, 31 March 2010
Shattered
So the last few days I seem to have been quite busy and now I am feeling shattered. These are the type of things I have been up to:
Growing a major concern for a increasing bald patch in my hair just above my left temple!
Battling with a coldsore right in the corner of my lip, it hurts so much!
Also battling with bad skin on my face, hello spots and greasy skin! Not good!
Also still battling with a cold and giving it to Pete in the process
Getting my hair done (this is when I spotted the bald patch)
Going shopping
Ordering some curtains for our new home
Going to the bank to transfer our deposit for the bungalow
Visiting the inlaws
Helping at my mums barber shop
Going to Yoga and bruising my hip
Going swimming and doing 24 lengths again which I'm rather proud of
Developed a fondness for porridge with golden syrup in
Doing voluntary work and getting a certificate for 3 years service (its actually 4 years but they had to give me 3 for some reason that I can't remember!)
Other stuff I am too tired to try remember
We won't be completing on our bungalow this week unfortunately. There was a problem with the house the vendors are moving to, so hopefully it will be next week. Can't wait!
Anyway thats it folks...! I know this is the most boring blog ever..... but I want to go to sleep!
Please fill in my new poll, I am determined to prove to Pete I am not weird!
Growing a major concern for a increasing bald patch in my hair just above my left temple!
Battling with a coldsore right in the corner of my lip, it hurts so much!
Also battling with bad skin on my face, hello spots and greasy skin! Not good!
Also still battling with a cold and giving it to Pete in the process
Getting my hair done (this is when I spotted the bald patch)
Going shopping
Ordering some curtains for our new home
Going to the bank to transfer our deposit for the bungalow
Visiting the inlaws
Helping at my mums barber shop
Going to Yoga and bruising my hip
Going swimming and doing 24 lengths again which I'm rather proud of
Developed a fondness for porridge with golden syrup in
Doing voluntary work and getting a certificate for 3 years service (its actually 4 years but they had to give me 3 for some reason that I can't remember!)
Other stuff I am too tired to try remember
We won't be completing on our bungalow this week unfortunately. There was a problem with the house the vendors are moving to, so hopefully it will be next week. Can't wait!
Anyway thats it folks...! I know this is the most boring blog ever..... but I want to go to sleep!
Please fill in my new poll, I am determined to prove to Pete I am not weird!
Wednesday, 20 January 2010
Catching Up
I'm glad the weather is getting slightly warmer, I've taken Alfie for three walks since I last blogged, so getting out more now. Its all muddy because of the melted ice/snow so poor Alfie has to be washed after every walk, which he doesn't enjoy very much! But at least he is getting walked! It was so busy around the lake on Sunday, I guess everyone feels the same, they want to get out of the house, it's like a new found freedom! The lake is still frozen over, all the ducks walk across it showing off. It's so unfair they get to have all the fun!!
I really enjoyed yoga this Monday, maybe I am getting better at it? The hour went really fast and I didn't feel as achy the day after. I might start going with my friend who I met up with today, she is a member at the gym so said she might join me next week if she is not working.
I haven't seen this particular friend for years, we used to be best friends at school, inseparable at one point. Things change though, she went to a different college to me, then university and then went travelling. So I haven't seen her for years! I was quite nervous about meeting her, you never know how people are going to have changed. However as soon as we met up it was like we'd never been apart, I forgot how great she is and was sad to find out she is going away again in March. Anyway we had a good natter for 4 hours and caught up on everything, it's weird how you can not see someone for years and then totally feel comfortable with them again in about 5 minutes! We first met in year 7 in the practise fire assembly as my surname was Harrison and hers is Harris and we had to stand in Alphabetical order, we couldn't decide who should go first! Clearly it was her but at the time it was confusing for some reason! I love catching up with old friends, so had a really nice afternoon.
The mortgage stuff is still getting sorted, I don't know why it takes so long. The estate agents keep calling us trying to move it along but there is not much we can do! We are going to meet the mortgage advisor tomorrow to discuss life insurance etc, should be an interesting conversation since I doubt anyone would want to insure me! I have trouble getting travel insurance, never mind life cover!
I really enjoyed yoga this Monday, maybe I am getting better at it? The hour went really fast and I didn't feel as achy the day after. I might start going with my friend who I met up with today, she is a member at the gym so said she might join me next week if she is not working.
I haven't seen this particular friend for years, we used to be best friends at school, inseparable at one point. Things change though, she went to a different college to me, then university and then went travelling. So I haven't seen her for years! I was quite nervous about meeting her, you never know how people are going to have changed. However as soon as we met up it was like we'd never been apart, I forgot how great she is and was sad to find out she is going away again in March. Anyway we had a good natter for 4 hours and caught up on everything, it's weird how you can not see someone for years and then totally feel comfortable with them again in about 5 minutes! We first met in year 7 in the practise fire assembly as my surname was Harrison and hers is Harris and we had to stand in Alphabetical order, we couldn't decide who should go first! Clearly it was her but at the time it was confusing for some reason! I love catching up with old friends, so had a really nice afternoon.
The mortgage stuff is still getting sorted, I don't know why it takes so long. The estate agents keep calling us trying to move it along but there is not much we can do! We are going to meet the mortgage advisor tomorrow to discuss life insurance etc, should be an interesting conversation since I doubt anyone would want to insure me! I have trouble getting travel insurance, never mind life cover!
Thursday, 14 January 2010
Murder by Yoga
I'm quite fed up at the moment, I don't seem to have much to do!
I love the snow but it means I can't take Alfie out, even if I do its a 15 minute job just around town so not very scenic or peaceful. I might actually try go somewhere today because it's abit warmer, about 1-2 degrees now whereas the past week or so its been freezing or below. No matter how many layers I put on I still seem to feel cold! Alfie also gets cold even with his coat on, he needs some boots or something!! So we have mainly been hibernating and watching my Tudors dvds that I got for Christmas.
The purchase of the property is moving on now, the mortgage guy has told us we have the mortgage subject to the valuation etc so that's good. Apparently they need to manually check it because of my benefits but he doesn't think this will cause a problem, lets hope so!! I have been eying things up in shops I want like curtains and rugs, just need to save some money up! Which leads onto he fact I am trying not to spend any money so I can save up, hence why I am also bored!
I had to fill in a tax returns form because I work at my mums barber shop each week (I am classed as self employed). I could swear the advert says tax doesn't have to taxing. Well since I couldn't log into the damn thing, that made it more difficult! I phoned them up and ended up getting very annoyed with the 'helpline' man as he was not very helpful atall and keep asking me why stuff wouldn't be working, why would I know?! That's why I am ringing him! After having a go at him he actually started to be abit more helpful and we established I had locked my self out, but rather than telling me this it was telling me I didn't exist! Stupid thing.
I eventually got in and filled it in, I also have to put in my incapacity benefit as it can be taxed (but the first 28 weeks don't get taxed), I don't think from reading the booklet that disability living allowance is taxable. Anyway, if I have filled it in right which I highly doubt I have done, then they owe me some money. Bonus!
I swear the woman at Yoga is trying to kill me. I've started going on a Monday instead and I think the other people may be more advanced because it seems to be more fast paced and it makes me get so out of breath! She gets us to breathe in and out really slowly over a few seconds whilst doing the yoga positions, seriously she is trying to kill me! I also ache the day after, I do not think I am very flexible! It's all good for me but hard work. She taught us last week a way to breathe to try get air into all parts of our lungs, she said it helps increase lung capacity. Bing! My ears pricked up! Basically the three parts of your lungs each need to be focused on, so you breath into your lower lungs first for 1 second, then your middle for 1 second then upper for 1 second. She taught us how to feel our chest so we know we are getting the right parts. Then when you breathe out you do the same, breathe out of lower first for one second, then middle then upper. Then you increase the seconds if you can. In the class she had us going up to 3 seconds per section of the lung, I sometimes managed 2 seconds per section of the lung (so 6 seconds breathing in) if I was lucky!
I decided to try this when doing my acapella, it doesn't work when doing it breathing out however it does work when breathing in, it seems to make sure it gets air to all of your lungs before you blow out. I seem to be shifting more mucus anyway!
I am actually very mad at the gym I go to. When I went on Monday to the yoga all the disabled spaces were taken. There are maybe 30 or more disabled spaces so you would think I would get one! But no they were all full so I had to park by the entrance (the drop off point) as I refused to park at the back of the carpark. I complained to the lady at reception and queried if anyone checked as most of the cars I saw had no disabled sticker. She said 'well it's because of the snow and ice, people want to park closer', can you believe that?! She was actually saying it was OK to do! I told her that I was actually disabled and couldn't find a space and when it snows, people who are disabled need the spaces even more and don't just disappear for others convenience! She said she would have a word with the manager but I doubt she did so I'm going to make a proper complaint as I don't think it's acceptable. They should be clearing the carpark so this doesn't happen and also put signs up reminding people that snow doesn't make them disabled! Or/And get someone to give out the fines they 'claim' to give out if you park in a disabled space without a sticker.
I love the snow but it means I can't take Alfie out, even if I do its a 15 minute job just around town so not very scenic or peaceful. I might actually try go somewhere today because it's abit warmer, about 1-2 degrees now whereas the past week or so its been freezing or below. No matter how many layers I put on I still seem to feel cold! Alfie also gets cold even with his coat on, he needs some boots or something!! So we have mainly been hibernating and watching my Tudors dvds that I got for Christmas.
The purchase of the property is moving on now, the mortgage guy has told us we have the mortgage subject to the valuation etc so that's good. Apparently they need to manually check it because of my benefits but he doesn't think this will cause a problem, lets hope so!! I have been eying things up in shops I want like curtains and rugs, just need to save some money up! Which leads onto he fact I am trying not to spend any money so I can save up, hence why I am also bored!
I had to fill in a tax returns form because I work at my mums barber shop each week (I am classed as self employed). I could swear the advert says tax doesn't have to taxing. Well since I couldn't log into the damn thing, that made it more difficult! I phoned them up and ended up getting very annoyed with the 'helpline' man as he was not very helpful atall and keep asking me why stuff wouldn't be working, why would I know?! That's why I am ringing him! After having a go at him he actually started to be abit more helpful and we established I had locked my self out, but rather than telling me this it was telling me I didn't exist! Stupid thing.
I eventually got in and filled it in, I also have to put in my incapacity benefit as it can be taxed (but the first 28 weeks don't get taxed), I don't think from reading the booklet that disability living allowance is taxable. Anyway, if I have filled it in right which I highly doubt I have done, then they owe me some money. Bonus!
I swear the woman at Yoga is trying to kill me. I've started going on a Monday instead and I think the other people may be more advanced because it seems to be more fast paced and it makes me get so out of breath! She gets us to breathe in and out really slowly over a few seconds whilst doing the yoga positions, seriously she is trying to kill me! I also ache the day after, I do not think I am very flexible! It's all good for me but hard work. She taught us last week a way to breathe to try get air into all parts of our lungs, she said it helps increase lung capacity. Bing! My ears pricked up! Basically the three parts of your lungs each need to be focused on, so you breath into your lower lungs first for 1 second, then your middle for 1 second then upper for 1 second. She taught us how to feel our chest so we know we are getting the right parts. Then when you breathe out you do the same, breathe out of lower first for one second, then middle then upper. Then you increase the seconds if you can. In the class she had us going up to 3 seconds per section of the lung, I sometimes managed 2 seconds per section of the lung (so 6 seconds breathing in) if I was lucky!
I decided to try this when doing my acapella, it doesn't work when doing it breathing out however it does work when breathing in, it seems to make sure it gets air to all of your lungs before you blow out. I seem to be shifting more mucus anyway!
I am actually very mad at the gym I go to. When I went on Monday to the yoga all the disabled spaces were taken. There are maybe 30 or more disabled spaces so you would think I would get one! But no they were all full so I had to park by the entrance (the drop off point) as I refused to park at the back of the carpark. I complained to the lady at reception and queried if anyone checked as most of the cars I saw had no disabled sticker. She said 'well it's because of the snow and ice, people want to park closer', can you believe that?! She was actually saying it was OK to do! I told her that I was actually disabled and couldn't find a space and when it snows, people who are disabled need the spaces even more and don't just disappear for others convenience! She said she would have a word with the manager but I doubt she did so I'm going to make a proper complaint as I don't think it's acceptable. They should be clearing the carpark so this doesn't happen and also put signs up reminding people that snow doesn't make them disabled! Or/And get someone to give out the fines they 'claim' to give out if you park in a disabled space without a sticker.
Wednesday, 21 October 2009
It must be nearly winter, colds are here!
I went to Yoga as planned on Friday, I really enjoyed it although I discovered I am not very flexible and also that everyone in my class was at least 10 years older than me or more. Whilst you do the stretches etc you have to take deep breathes and we also did some meditation where you concentrate on your breathing so I hope it really helps. I have tried yoga once before, many years ago, I think I was about 16. I absolutely hated it, all I remember is there was alot of standing straight like a tree, there was none of that in this class, it was alot more productive. I told the lady about my CF at the start, basically I told her I had a port in my arm that might mean I couldn't do some of the stretches with my left arm if it involved bending it around my back etc and also if I started coughing just to ignore me (which I didn't do anyway).
I did in the changing room though and some woman started going on about my cough and that make sure I didn't give swine flu to anyone, she was really loud and everyone could hear so I put her straight. So then she was all apologetic (making me feel guilty) saying I looked at fit as a fiddle and she told me I took loads of tablets (yes I do know that) then her mate was commenting on me coming to the gym. I was like 'hello I just want to get changed and go'...! Everyone was gawping at me in the room, I was mortified!
At the weekend Pete and I went out into town for his mates birthday. It wasn't the best night for various reasons I can't go into. Then on Sunday we went to see the inlaws for a nice Sunday roast, even Alfie came with us and I was trying to use the clicker training (which he did take to) to get him to behave near our nephew. Alfie still barks at him and has to stay on his lead and now the baby is running around and loves Alfie, its difficult to keep them apart. So basically everytime Alfie didn't bark at the baby and was well behaved I clicked the clicker to tell him this was a good behaviour and gave him a treat. Eventually the clicker will become the reward itself as he will associate it with getting treats i.e. been happy and pressing a clicker is alot easier than rooting through the treats box each time he is good. Obviously you still have to give him treats sometimes, he's not stupid! If you ever did psychology at A-level/degree you will probably remember Pavlovs dogs, it's the same concept with the classical conditioning.
On Monday Pete had the day off work, he has had a cold since we came back from Thailand and he was quite bad on Monday. I tried to be as sympathetic as possible, I even slept on the sofa on Sunday night, he was snoring and breathing all funny and I couldn't exactly kick him out of bed could I? I ran him a bath, went to the chemist for him but by the afternoon my nice streak had worn off before guess who else started to feel rubbish? Yes that would be moi..! So my gym routine was already ruined although I did take Alfie for a walk so still got some exercise. I am gargling TCP twice a day and using vicks first defense but I have developed a productive cough and my throat is starting to hurt. I have my flu jab today, I'm not telling the nurse else she probably won't let me have it.
I have started on the thank you cards this week to send out to all the wedding guests, that's a job and a half! I have to cut 100 pieces of A4 in half with the smallest scissors ever as Pete broke the big ones when we were opening all the wedding presents. Then I have to write in them all and stick them into some other card, see what I mean?! I can't let Pete help me, I can't trust him to do it properly...!
I did in the changing room though and some woman started going on about my cough and that make sure I didn't give swine flu to anyone, she was really loud and everyone could hear so I put her straight. So then she was all apologetic (making me feel guilty) saying I looked at fit as a fiddle and she told me I took loads of tablets (yes I do know that) then her mate was commenting on me coming to the gym. I was like 'hello I just want to get changed and go'...! Everyone was gawping at me in the room, I was mortified!
At the weekend Pete and I went out into town for his mates birthday. It wasn't the best night for various reasons I can't go into. Then on Sunday we went to see the inlaws for a nice Sunday roast, even Alfie came with us and I was trying to use the clicker training (which he did take to) to get him to behave near our nephew. Alfie still barks at him and has to stay on his lead and now the baby is running around and loves Alfie, its difficult to keep them apart. So basically everytime Alfie didn't bark at the baby and was well behaved I clicked the clicker to tell him this was a good behaviour and gave him a treat. Eventually the clicker will become the reward itself as he will associate it with getting treats i.e. been happy and pressing a clicker is alot easier than rooting through the treats box each time he is good. Obviously you still have to give him treats sometimes, he's not stupid! If you ever did psychology at A-level/degree you will probably remember Pavlovs dogs, it's the same concept with the classical conditioning.
On Monday Pete had the day off work, he has had a cold since we came back from Thailand and he was quite bad on Monday. I tried to be as sympathetic as possible, I even slept on the sofa on Sunday night, he was snoring and breathing all funny and I couldn't exactly kick him out of bed could I? I ran him a bath, went to the chemist for him but by the afternoon my nice streak had worn off before guess who else started to feel rubbish? Yes that would be moi..! So my gym routine was already ruined although I did take Alfie for a walk so still got some exercise. I am gargling TCP twice a day and using vicks first defense but I have developed a productive cough and my throat is starting to hurt. I have my flu jab today, I'm not telling the nurse else she probably won't let me have it.
I have started on the thank you cards this week to send out to all the wedding guests, that's a job and a half! I have to cut 100 pieces of A4 in half with the smallest scissors ever as Pete broke the big ones when we were opening all the wedding presents. Then I have to write in them all and stick them into some other card, see what I mean?! I can't let Pete help me, I can't trust him to do it properly...!
Wednesday, 14 October 2009
RIP Mobile Phone
Since I got back from our Honeymoon I have had a headache every day, not necessarily a full blown one but a definite ache there constantly. As you can imagine this is not very nice and I am getting annoyed at it. It's mainly on a morning and it gets worse when I have a coughing episode, for example last night I was doing my physio and the right side of my head felt like it was going to pop everytime I coughed.
I took some books back to the library the other day and the two second walk it took from the car to the library made me cough alot and then voila I got a splitting headache, all from retuning a few books!
Enough is enough, when 2 cocodamol and 2 ibuprofen are not shifting the pain, intervention is required! So I called the hospital on Monday, I had been putting it off as I don't want to end up on IV's which is my dread everytime I dial that number! I spoke to the nurse and asked her if she could send me a prescription for doxy... whatever its called (my medical vocabulary is amazing I tell you...!), surprisingly she said if the doctor said it was OK then that was fine. Wahoo! I didn't even have to go see them! So I am just waiting to receive that and then hopefully it will help stop the headaches as I am assuming it is infection and inflammation in my sinuses.
I have had to buy a new mobile phone as mine decided to start dying on Saturday. It was teasing me and flashing on and off, my poor mobile, I'd hoped it would survive forever but alas its days are over. I had hoped I could buy the same one. This is a sign of me getting old! I can't be bothering learning new functions on a new mobile and my lovely Samsung D800 does everything I require of it. But no, they don't seem to do it anymore and somehow I have ended up buying a touchscreen mobile which I swore I wouldn't do as Pete has one and I can't use it! I know exactly what happened, it was pink, what more can I say...? So since last night I am the owner of a pink Samsung (I kept with the same make to make my transition easier) tocco lite. We will see how it goes, I can see it been a love - hate relationship!
Does anyone else hate having to transfer all your numbers, photos etc to the new phone? I do! I spent all last night doing it, this is part of the reason I put off getting a new phone for so long!
Alfie started his dog training classes again last week, he did very well. There are some massive dogs in this class, like one of those Akita's and a very bouncy Labrador. Despite been surrounded by giants... Alfie did well for his first session, we are starting clicker training this week. Apparently Chihuahua's don't always take to it (why am I not surprised), so we will see how it goes!
Alfie hurt his back leg again on Monday so I was the owner of a hopping, three legged dog for the day. I was going to video it but felt cruel! He is much improved now, he is not screaming anymore when I try touch the offending leg and he is walking normally again, so I think he just pulled or twisted a muscle. I did spend most of Monday holding one of those heat up rice bag thingys to his leg, that dog doesn't realise how lucky he is to have such a caring owner!
I've started back at the gym after a month of not going! I am planning to join yoga as someone on the CF forum said it can help with your lungs. So my plan is... gym on a Monday, swimming on a Wednesday and yoga on a Friday. We will see how I go!
I took some books back to the library the other day and the two second walk it took from the car to the library made me cough alot and then voila I got a splitting headache, all from retuning a few books!
Enough is enough, when 2 cocodamol and 2 ibuprofen are not shifting the pain, intervention is required! So I called the hospital on Monday, I had been putting it off as I don't want to end up on IV's which is my dread everytime I dial that number! I spoke to the nurse and asked her if she could send me a prescription for doxy... whatever its called (my medical vocabulary is amazing I tell you...!), surprisingly she said if the doctor said it was OK then that was fine. Wahoo! I didn't even have to go see them! So I am just waiting to receive that and then hopefully it will help stop the headaches as I am assuming it is infection and inflammation in my sinuses.
I have had to buy a new mobile phone as mine decided to start dying on Saturday. It was teasing me and flashing on and off, my poor mobile, I'd hoped it would survive forever but alas its days are over. I had hoped I could buy the same one. This is a sign of me getting old! I can't be bothering learning new functions on a new mobile and my lovely Samsung D800 does everything I require of it. But no, they don't seem to do it anymore and somehow I have ended up buying a touchscreen mobile which I swore I wouldn't do as Pete has one and I can't use it! I know exactly what happened, it was pink, what more can I say...? So since last night I am the owner of a pink Samsung (I kept with the same make to make my transition easier) tocco lite. We will see how it goes, I can see it been a love - hate relationship!
Does anyone else hate having to transfer all your numbers, photos etc to the new phone? I do! I spent all last night doing it, this is part of the reason I put off getting a new phone for so long!
Alfie started his dog training classes again last week, he did very well. There are some massive dogs in this class, like one of those Akita's and a very bouncy Labrador. Despite been surrounded by giants... Alfie did well for his first session, we are starting clicker training this week. Apparently Chihuahua's don't always take to it (why am I not surprised), so we will see how it goes!
Alfie hurt his back leg again on Monday so I was the owner of a hopping, three legged dog for the day. I was going to video it but felt cruel! He is much improved now, he is not screaming anymore when I try touch the offending leg and he is walking normally again, so I think he just pulled or twisted a muscle. I did spend most of Monday holding one of those heat up rice bag thingys to his leg, that dog doesn't realise how lucky he is to have such a caring owner!
I've started back at the gym after a month of not going! I am planning to join yoga as someone on the CF forum said it can help with your lungs. So my plan is... gym on a Monday, swimming on a Wednesday and yoga on a Friday. We will see how I go!
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