Mission Impossible!

I had outpatients on Friday, my weight is down to 54.7kg so now the dietitian is 'monitoring' me, this is her little way of saying 'its getting abit low, sort it out!'. The doctor asked me if i had been dieting, did I think I was fat? Erm no and no! I have no idea why it's gone down, on my weight graph it is at the lower end, it used to be 57kg but still it's not that much! Guess I'll down some skandishakes to keep them happy!

My fev1 was down from 46% to 41% but fvc was the same at 63%. I'm so annoyed! I've been feeling pretty good apart from the cold stuff and I've been going to the gym the past 2 weeks, what do you want from me you stupid cf?! I am 100% compliant, I do all my physio, my nebs, my tablets, I exercise loads and I am really, really getting annoyed, it is seriously an impossible mission to keep it up. ARGH!!!!!!!!!!!!!!!!!!!!!!!!!!!

Anyway I am not going on IV's, I feel OK and the last few IV's I have had have done naff all so I said I didn't want them. However now I know my lung function is down, I have become aware of all this coughing I am doing and I'm aching so much, I thought that was from the flu jab though. On Thursday I was aching so much I seriously thought I might fall apart! So now I am thinking perhaps I should have some, they took some bloods anyway to measure my crp levels and I guess they will call me if they have gone up anymore. I have to go to outpatients again in a month which means leaving 6 and half weeks in between my port flushes (I had my port flushed just over 2 weeks ago), the nurse said it would be OK as a one off.

When I went for my flu jab the nurse asked me if I was on any antibiotics and then freaked out when I said 'yes'. I assured her I took them all the time (a small white lie about the doxy I'm on for my sinuses but nevermind....) which seemed to calm her. How quickly do they stick those jabs in your arm?!

I went to the cinema last night with my friend to see 'Surrogates', it has Bruce Willis in it and it's about people living their lives through robots whilst they sit at home all day controlling the robot. It was quite good and it was nice to see my friend. My two best friends don't live near me anymore, one lives in Sheffield and one in Lincoln. They come home most weekends but both have boyfriends too so I can't see them all the time. So it's just little old me left here whilst they go off doing their high flying jobs, abit depressing really.