I started my IV's today, my friend came with me which was nice of her, she offered to come, I didn't ask or anything. My other best friend was going to come too but this morning she text me saying she had too much to do so couldn't come, she is going travelling around Australia for 6 weeks tomorrow and she is not very organised so I kind of expected this to happen!
Got to the hospital (after going in the wrong lane on way there and having abit of a panic) and went to my secret disabled space and there was a delivery van parked there! I kindly asked the man if he was planning on staying there and he said he would be 5 minutes, I then asked if he had a disabled sticker? No he didn't and said he would move as soon as possible. I told him could he move now as he couldn't park there and I was late for my appointment. He finally decided to move, idiot!
So did the usual stuff to start IV's, and can you believe it. My lung function is back up at 52%?! Crazy stuff. I'm still going on the IV's as obviously they are all ordered and delivered, plus I still have sore lungs and need booster as haven't had any for a few months now. The only reason I can think that this has happened is because I started my tobi nebs last week? Who knows?! my weight has gone down to 55.6kg so the dietitian wasn't too pleased, I told her my appetite is abit funny and I am only eating stuff worth eating i.e. really nice stuff like curries etc. I didn't have any tea last night as there was nothing worth having and I've started sacking breakfast off. She says to have skandishakes when I don't feel like eating (these are high calorie milk shakes, about 600 calories per milkshake I think, they are delicious!), just so I don't lose anymore weight and it becomes a problem.
Because I have never had meropenem before I had to have my first 2 doses of it at hospital which meant I had to go back 6 hours later which I wasn't too pleased about, no-one told me I would have to do that! When I weighed myself when I went back for my second dose, my weight was 56.2kg, probably something to do with the fact my friend and I went to TGI Fridays for lunch and I ate loads, doctors orders! So I'm not really that concerned about my weight, they do like to make a fuss about nothing sometimes.
I slept most of the afternoon, that first dose of IV's always hits me hard. Not sure if I'm going to like this meropenem, the nurse made it look really easy making it up but when I had a go it took me forever! I'm having meropenem 3 times a day and tobramycin once a day which takes an hour to go through the eclipse, if you don't know what an eclipse is, look at my older posts from when I had my IV's last year and I explain what one is there and I think there are even pictures! Its basically ready made for me to use and is like a balloon that goes down and so pushes the drug into me. I might post some more pictures this time around but can't be bothered to do it today, too tired! xx
Thursday, 15 January 2009
My body is weird!
Labels:
appetite,
disabled sticker,
eclipse,
IVs,
lung function,
sleeping,
tobi,
weight
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5 comments:
You guys have it so easy getting your drugs made up for you!!! The new drug will probably be a pain but maybe it'll end up being really beneficial :)
Hey, Iam day 11 today, I've had Mero before its a pain in the bum to mixbut you'll get used to it!
I am on TOBY 3x and Aztrenom 3x(spelling) at the mo its hard going but you'll get there!
gemma i am still jealous of your weight lol. i normally only have one dose of ivs in hospital then am ok. that's good your lf is up but good idea fo ivs still just to keep on top of it :) mero is awful when you first have it really knocks you for 6 xx
Everyone started Iv's this week lol. Im starting Colomycin, Teicoplanin and POSSIBLY mero, but i dont remember !
Nice of ur mate to come though, clinics are such a drag otherwise !
Drugs bein delivered monday morning all made up, yay ! Good Old Bupa !
how do you get all your drugs made up??? i have to do all of mine and i have connor running around so its alot harder lol
i have to go papworth on wednesday but im fairly sure i wont need i.v's! fingers crossed
hope you feel better soon gem xx
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